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prima:Long live the hope of a cure for children with the mutation known as the “Boricua gene”

New scientific advances point to the possibility of treating these patients through an innovative gene therapy process, but their families need to raise millions of dollars to advance to the next phases of the study

August 11, 2024 - 6:00 PM

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This content was published more than 3 months ago.
From left to right, Caroline Bonilla, along with her son Emilio Lopez, and Viviana Rodriguez have the goal of raising $6 million to continue studies to identify a treatment or cure for patients with the FRRS1L gene mutation. (Pablo Martínez Rodríguez)

After a pregnancy without any complications, Viviana Rodríguez gave birth to Arturo Javier six years ago. Both she and her husband, Arturo Alonso, were overwhelmed with emotion. They were first-time parents.

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