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“What’s going to happen when we are gone?”: older adults live in fear of an uncertain future for their children with functional diversity

Lack of services, lack of support for caregivers, and financial barriers combine to make planning the future for this population difficult.

January 16, 2024 - 9:30 PM

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This content was published more than 10 months ago.

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Together with her husband, Aida Ortiz Baez is the one who takes care of her son Eduardo Pagan Ortiz, diagnosed with severe non-verbal autism, but as the years go by, the anguish of not knowing who will take care of him when she is gone increases. (Nahira Montcourt)

By Amanda Pérez Pintado

Periodista de Noticiasamanda.perez@gfrmedia.com

Coamo - Aida Ortiz Báez and her son, Eduardo Pagán Ortiz (22), walk hand in hand through their farm under the hot sun of a recent afternoon. On the land near their home is a huge mango tree, which the family has named “Eduardo,” and swings are scattered around for Eduardo to play on.